There are many good websites. Here are a few to start with:
National Down Syndrome Society www.ndss.org
Down Syndrome Health Issues www.ds-health.com
There are also many books available. Here are some suggestions.
For Parents:
Babies with Down Syndrome: A New Parents’ Guide, edited by Karen Stray-Gundersen, published by Woodbine House.
Medical and Surgical Care for Children with Down Syndrome, a Guide for Parents, edited by D. C. VanDyke and P. Mattheis, published by Woodbine House.
Uncommon Fathers – Reflections on Raising a Child with a Disability, edited by Donald J. Meyer.
Expecting Adam - The Story of Birth, Rebirth and Everyday Magic, by Martha Beck.
Our New Favorite, and highly recommended book:
Gifts - Mothers Reflect on How Children with Down Syndrome Enrich Their Lives
“This fine book helps dispel the fear and misinformation about Down syndrome that many parents and prospective parents face. As these deft essays convey, the world would be a sweeter place with more Down syndrome citizens, not fewer.” --George F. Will
For Children:
We'll Paint the Octopus Red, by Stephanie Stuve-Bodeen and Pam DeVito.
The Best Worst Brother, by Stephanie Stuve-Bodeen and Pam DeVito.
Views From Our Shoes, edited by Donald J. Meyer.
New Jersey Division of Developmental Disabilities:
The Division of Developmental Disabilities serves more than 35,000 people with developmental disabilities. Most services are provided through state contracts with private organizations or individuals. The availability of services depends on current resources; the types of services may vary in each county. It is not just for adults!
http://http://www.state.nj.us/humanservices/ddd/index.html
SPAN - Statewide Parent Advocacy Network: The mission of the Statewide Parent Advocacy Network is to empower and support families and inform and involve professionals and others interested in the healthy development and education of children and youth.
http://www.spannj.org
United Healthcare Grants Help Pay for Children’s Medical Needs-Speech Language Treatment, Hearing Aids Covered -
http://www.uhccf.org